• Faith,  Family,  Mom Life,  patience,  Special Needs Parenting

    It’s the Little Things

    Confession Time: I’m horrible at budgeting. Like really bad. It’s easy to sit down and figure out the big things like rent payment, utilities, car payment, phone bill, etc., but I struggle to properly allot for the little things. A t-shirt here, a stop by Starbucks (or two or three…), a trip to McDonalds on the way home from church, diaper genie refills; these are the things that get me. Fortunately, my husband is far better at financial budgeting than I am, so this is an area where I defer to him. However, I realized that this problem manifests itself in all parts of my life. Time budgeting… I am…

  • Adoption,  Faith,  Family,  Love,  Mom Life,  Special Needs Parenting

    The Exhausting Mundane

    We’ve entered a new phase of life. I call it The Exhausting Mundane. It was a gradual slip into this new normal, and it’s been hard for me to wrap my brain around it. I guess that’s why it has taken me so long to update our blog. On paper, things are easier. Superman is now 5 years old, he’s incredibly helpful and independent. Batman is growing up too and there’s been a giant jump in his independence, especially when combined with help from big brother. Wonder Woman is out of what I’d call the acute phase. She’s now 18 months old and for the most part, she’s a very…

  • Adoption,  Hydranencephaly,  Special Needs,  Special Needs Parenting

    One Year Later: A Medical Update

    We have now had Wonder Woman in our arms for a full year. I can’t wrap my head around all that has happened, all that we have survived together. As many of you know, and we haven’t been shy to share, it was statistically unlikely that she would live for a whole year. I’d like to take this time to update you medically on where we are at, what her future holds, and answer what I can about her prognosis from this point on. To say that it was unlikely she would reach her first birthday to me rings as both true and untrue. Because her system is so fragile,…

  • Family,  Hope,  Hydranencephaly,  Life,  Love,  Special Needs,  Special Needs Parenting,  Unexpected

    Happy Birthday, Wonder Woman

    When I was a little girl, my family visited Omaha Beach in Normandy, France. Though I understood very little about the significance of the location, I have always remembered the trip. Specifically, I remember running with children of different nationalities up and down into grassy spaces that seemed like bowls carved into the ground. I remember my mother telling me that those bowls were craters caused by bombs from WWII. I didn’t understand the significance, my six year old self couldn’t imagine the type of destruction that could leave permanent marks in the earth decades later. I couldn’t comprehend the death, the grief, that each of those craters caused, rippling…

  • Faith,  Family,  Hope,  Hydranencephaly,  Life,  Special Needs,  Special Needs Parenting

    Magic & Miracles

    I’ve just realized that I haven’t blogged in almost 2 months. My apologies, life has been full. Mostly full of great things, making me wonder at how quickly time flies. June was the month of vacations for us. Ocean City with family, Salt Lake City by myself for the Jamberry International Conference, and then our dream vacation to Disney World. It was a whirlwind, and God was so gracious to answer my prayers regarding the trips. It was a blessing introducing Wonder Woman to more of my extended family. It is our goal that she would meet all of our extended family, and we are getting there. This little girl…

  • Faith,  Family,  Life,  Special Needs Parenting

    Sunshine & Rainbows

    Life is sunshine and rainbows. Stick with me here. No, our life isn’t easy living all the time. In fact, it’s often hard, most days are exhausting, and some days are even brutal. Some days we just survive. 5 months with a beautiful baby whose only vocalizations have been crying or fussing is extremely trying. Parenting an independent and stubborn toddler is trying. Teaching and molding a boundary learning [pushing] preschooler is trying. It’s the season of life we are in. There are days that end with John and I flopped on the couch, mindlessly doing anything on our phones to try and decompress from the day. There are also…

  • Faith,  Family,  Hydranencephaly,  Special Needs Parenting

    Hope Filled, Hope Fueled

    I wish you could fill up on hope like you do caffeine. Brew a big pot of it at home, add a dash (in my case half a cup) of creamer, and drink up. Or maybe on a rough day swing by the drive thru and grab a five dollar cup of hope with a fancy Italian name, your favorite pastry, and let that green lady get you through the day. Unfortunately, it’s not that easy. Don’t get me wrong, I’ve got an eternal hope, a beautiful knowledge of life everlasting with the God of love. But it’s hard to live a hope filled life sometimes. I’ve noticed this a…

  • Love,  Special Needs Parenting

    Love Alone

    “But Daddy, I love him!” Ariel shouts to her father, protecting her statue of dear Prince Eric. My child mind thought, oh how sad her dad doesn’t understand love. My adult mind says, oh sweet goodness you’re 16 and you’ve never even spoken to the man. That’s not love! Obviously, my concept of love has changed over the decades since I first saw The Little Mermaid. The last year, even more so. I’ve experienced God’s love for me in ways so overwhelming that it has fundamentally changed me. And as I spend more time focused on love and what it means in this world, I understand why love is what…

  • Adoption,  Faith,  Family,  Grief,  Hydranencephaly,  Life,  Special Needs Parenting

    The In Between

    You may have noticed it’s been a while since my last post. I’ve written and rewritten this blog multiple times and have yet to publish it. Mainly because one day I write and feel one way and the next day I write and feel another. Some days it feels too whiny, other days too depressing, and other days too fake. I’ve promised honesty here, and to come and pretend that everything is sunshine and rainbows would be disingenuous. But to be morose and talk only about the depression I’m facing or the grief I’m trying to process wouldn’t be entirely honest either. I’m in the in-between. I have a newborn,…

  • Adoption,  Faith,  Family,  Grace,  Hydranencephaly,  Special Needs,  Special Needs Parenting

    Hospital Stays & Grace for Days

    I’m adjusting to being a family of 5. I’ve always heard that going from 2 to 3 is difficult, and I can now attest that is not a lie. (Not that I ever imagined it was). Trying to get out of the house… Dear friend, please give up on the hope of me ever being anywhere on time again. Since arriving in Texas our little girl has been showered with love by friends and family and I absolutely love it. (She received the same in Arkansas!) Our boys have also been getting the spoiled. I fear that their idea of Christmas time now means bunches of people giving them presents day…