- Adoption, Faith, Family, Hope, Hydranencephaly, Life, Special Needs, Special Needs Parenting, Unexpected
Impossible
“It’s impossible.” I told God. Well, I didn’t tell him those exact words, my actions did. I stopped praying for something that’s been heavy on my heart. I gave up hope. I know he’s the God of miracles, but I’ve been praying for years and this thing felt too far gone. I became frustrated praying for something that repeatedly went unanswered. My persistence didn’t seem to pay off, things are no better than when I started praying. It is extremely hard to have faith in God when it feels like he’s letting you down. My mind attempts mental gymnastics to not face the reality that God can simultaneously be sovereign and…
- Adoption, Depression, Family, Grief, Hydranencephaly, Life, Pressure, Special Needs, Special Needs Parenting, Unexpected
Red Rover
It was sunset, and I was driving south down a long road. Looking to the west out my passenger window I could see for miles. There was an unobstructed view of the mountains, silhouetted and backlit by a gorgeous orange glow. The sun had sunk below the peaks, its radiance shining upward, turning the sky into a stunning display of colors, blending yellows, oranges, pinks, and purples in an ombre affect only God could create. Out my driver’s side window to the east the view was dark, mixed hues of purples and blues, and lit by the bright orb of an almost full moon. Beautiful in its own right, but…
One Year Later: A Medical Update
We have now had Wonder Woman in our arms for a full year. I can’t wrap my head around all that has happened, all that we have survived together. As many of you know, and we haven’t been shy to share, it was statistically unlikely that she would live for a whole year. I’d like to take this time to update you medically on where we are at, what her future holds, and answer what I can about her prognosis from this point on. To say that it was unlikely she would reach her first birthday to me rings as both true and untrue. Because her system is so fragile,…
