• Hydranencephaly,  Special Needs,  Special Needs Parenting

    What I Wish You Knew

    When my daughter was a month old, we took her to an emergency room in Texas. Her adoption had occurred in another state, and we used the out of town opportunity to visit family. Before leaving her home state, we expressed concerns regarding her head growth and demeanor to doctors, but they told us to keep an eye on it and sent us on our way. A week later, we felt our daughter’s extreme discomfort and increasing head circumference warranted an ER visit. That night our daughter was transferred from the military hospital to the local children’s hospital. She experienced her first ambulance ride, as did I, and we found…

  • Faith,  Special Needs Parenting

    Living with Fear

    Winter is finally coming to a close here in Colorado. The sun is out and lighting up this colorful state with fireball sunrises and brilliant blue skies, and I am finally able to enjoy this place again. I sat outside yesterday, soaking up the warmth that I’ve missed, and listened to my boys play. I love to hear them play, their imagination and creativity at work, the sounds of fun. Over the noise of their yelling (do boys play any games without yelling?), I could hear the word ‘coronavirus’ repeated. I paused my writing to listen and figure out what in the world was going on and determined that the…