• Hydranencephaly,  Special Needs,  Special Needs Parenting

    What I Wish You Knew

    When my daughter was a month old, we took her to an emergency room in Texas. Her adoption had occurred in another state, and we used the out of town opportunity to visit family. Before leaving her home state, we expressed concerns regarding her head growth and demeanor to doctors, but they told us to keep an eye on it and sent us on our way. A week later, we felt our daughter’s extreme discomfort and increasing head circumference warranted an ER visit. That night our daughter was transferred from the military hospital to the local children’s hospital. She experienced her first ambulance ride, as did I, and we found…